Support and Resources
If you or know someone who would like to volunteer to run this support group please contact us at info@CADASILfoudation.org
Since CADASIL has so many different symptoms, it is impossible to find a caregivers group for CADASIL. Caregivers are encouraged to look in your community for support groups for the symptoms your love one is having.
Caregivers has been attending an Alzheimer's Dementia support group and they have reported this has assisted many ways of coping, understanding about dementia, ways to respond to loved ones and excellent resources in the area. Look in your area for a support group which could assist you.
Seek support from other caregivers. There is great strength in knowing you are not alone.
There are many support forums for patients, but none reserved for CADASIL caregivers.
This is a place for caregivers to vent and discuss doctors, therapies, well-intentioned family members, etc. - all without the fear of insulting anyone.
www.caregiving.com helps you care for family members and friends. They are a community of family caregivers sharing stories, support and solutions. They possess a wealth of information and many resources on their website.
Other Caregivers Resources
Presently the CADASIL France Association and CERVCO (the reference center for CADASIL) are updating their caregivers guide specific for CADASIL patients and their families. Once it has been updated and translated, we will place it on this web page.