Coping and Support
How Others Cope
These are families who has shared their experiences with how they deal with CADASIL
This forum was established in 1997. This support forum is for patients, spouses, parents, families and friends all bound together by the common experience of CADASIL.
Since CADASIL has so many different symptoms, it is impossible to find a caregivers group for CADASIL. We have a forum plus you can find other resources.
The views expressed by others on Facebook, Lindedin and Tweeter does not reflect the views of the nonprofit. It is very important for patients and doctors alike to understand that every case of CADASIL is different and patients need to develop a good relationship with their doctors. The patient should have access to appropriate testing facilities, genetic counseling, and prevention medicines for symptoms.
You Tube CADASIL Channel