We are devoted to promoting awareness/education, support and research for this rare genetic disease for CADASIL patients, families, friends and healthcare providers. We are also dedicated to creating a communication network among families as well as identifying sources of medical care and social services. Your continued support enables the organization to remain focused on our mission as we solely depend on donations and are not funded by any entity. No matter the size of your donation it will make a difference.
We encourage donations to research and prefer you send funds directly to an entity which funds research grants or conducts research. CTWHH has listed some suggestions below for you to explore with due diligence prior to making a donation. Kindly let us know if you find other groups or individuals around the world who are able to receive tax deductible contributions and should be added to the listed below.
Please note we do not directly endorse any individual, organization, hospital, or research team but rather provide information for you to make an educated decision.
CERVCO is a reference center for CADASIL and is an approved project of Friends of Fondation de France, Inc. (FFDF). The Friends of Fondation de France, Inc. (FFDF) is a public charity in the United States. Its purpose is to support the work of France's leading private charitable institution, the Fondation de France, and its thousands of grantee organizations. FFDF helps American individuals, foundations, and corporations donate to French charities active in social services, health and medical research, culture, sciences and the environment. CERVCO donations for CADASIL research in Paris, France should be made under ADNL (Association pour le Développement des Neurosciences à l'Hôpital Lariboisière). These funds go directly to CADASIL Research in Paris, France and you receive a tax deduction as the FFDF is recognized by the Internal Revenue as a 501(c)(3) organization. For direct donations, go to: http://www.nycharities.org/donate/c_donate.asp?CharityCode=1598 When you designate your donation for CADASIL research, make sure you type in ADNL.
The United Leukodystrophy Foundation (ULF) accepts donations specifically targeted for CADASIL research. The ULF has the ability to fund research grants for CADASIL which mirrors the guidelines of the National Institute of Health. Go to their website at www.ulf.org or mail a check earmarked for CADASIL research to: ULF, 304 Highland Drive, Sycamore, IL 60178.
The CADASIL Tissue and Protein Project at the University of Michigan has federal grants to study CADASIL from the NIH (National Institute of Health) and the Veterans Administration. Dr. Michael Wang is studying proteins that accumulate with Notch3 in the vessels of the brain. Identifying these proteins gives them an insight into possible targets for therapy for CADASIL patients. The lab is solely supported by federal grants and generous donations from patients and their families and friends. If you would like to learn more about the program and opportunities to support it, view the information at http://sitemaker.umich.edu/wang.lab/contact_information Additionally you can contact: Maria Grupe Bertram, Director of Development, Department of Neurology, 1000 Oakbrook, Ste. 100, SPC6794, Ann Arbor MI 48104. You may also reach her via e-mail at firstname.lastname@example.org or by telephone at 734-763-6184 begin_of_the_skype_highlighting 734-763-6184
Dr. Stephen Salloway has established a CADASIL tissue bank in collaboration with colleagues in Rhode Island. Studies with CADASIL brain tissue are leading to advances in understanding the molecular causes of small artery degeneration in CADASIL, which will hopefully lead to new treatments in the future. Monetary donations can be sent to: Dr. Stephen Salloway, Memory & Aging Program, c/o Butler Hospital, 345 Blackstone Blvd., Providence, RI 02906. You may also reach him by e-mail at SSalloway@Butler.org or by telephone at (401)455-6403 begin_of_the_skype_highlighting (401)455-6403.
The CADASIL project in the laboratory of Joseph F. Arboleda-Velasquez at Massachusetts Eye and Ear Infirmary/Harvard Medical School focuses on evaluating therapeutic approaches for CADASIL. Specifically, he aims to test whether manipulation of the Notch signaling pathway could rescue arterial degeneration that is characteristic of the disease and underlies stroke susceptibility. This research may lead to therapeutic approaches for this devastating human syndrome affecting hundreds of families around the world. See a link to the lab’s website at http://www.schepens.harvard.edu/arboleda. Make your check payable to the: The Foundation of the MEEI Inc., 243 Charles Street, Boston, MA 02114. It is very important that you write on the check the following statement: "To support the research work of Dr. Joseph Arboleda-Velasquez addressing small-vessel diseases." Please note that gifts to Massachusetts Eye and Ear are 100% tax-deductible.
The University of Calgary is pleased to accept donations in support of CADASIL research. Cheques are to be made payable to the University of Calgary and directed to the CADASIL research program in a cover letter or in the memo section of the cheque. Please direct gifts or inquiries to: Fund Development Office, Faculty of Medicine, University of Calgary, 3330 Hospital Dr. NW, Calgary, AB T2N 4N1. The contact telephone phone number is 403-210-3964 or 403-210-3964 FREE end_of_the_skype_highlighting.
Institut für Schlaganfall- und Demenzforschung (Institute for Stroke and Dementia Research) can be supported by a one-time cash donation or by standing order. Donations are tax deductible. Donation receipts are available upon request through the secretary: +49 (0)89 7095 7801 begin_of_the_skype_highlighting +49 (0)89 7095 7801 FREE end_of_the_skype_highlighting. Additional information can be obtained from Dr. Martin Dichgans, Director, Institut für Schlaganfall- und Demenzforschung (Institute for Stroke and Dementia Research), Marchioninistr. 15, D-81377 Muenchen or viewed at the website at: http://www.dzne.de/standorte/muenchen/assoziierte-gruppen/dichgans.html Account for donations: ISDAccount holder: Klinikum der Universitaet MuenchenBank: Bayerische Landesbank MuenchenBank Code: 70050000Account No.: 2020040IBAN: DE38 7005 0000 0002 0200 40BIC: BYLADEMMReason for transfer: 80218000 – Donations account ISD Germany
The University of Glasgow accepts donations from CADASIL patients and their families. Cheques should be made out to the “Neurovascular Research Fund.” For additional information, donors should contact Dr. Keith Muir, SINAPSE Professor of Clinical Imaging & Consultant Neurologist Institute of Neurosciences & Psychology, University of Glasgow, Southern General Hospital, Glasgow G51 4TF. His telephone number is: +44 (0)141 201 2502 or +44 (0)141 201 2502 You can visit the university’s website for more details http://www.gla.ac.uk/departments/clinicalneuroscience/our staff/drkmuir/